Wilms@Home works solely for the benefit of families and survivors directly affected by Wilms Tumour (nephroblastoma) during and after treatment. Everyone in the Wilms at Home team works on a voluntary basis. Most members on the committee are directly affected by Wilms.
The main objectives of the organisation are:
• To provide a support and info network for families affected by Wilms via website, email and newsletter;
• To highlight relevant issues affected families may have during treatment and aftercare;
• To enable family members affected by Wilms' Tumour to travel and attend relevant conferences and meetings;
• To promote and support financially further research into Wilms' Tumour treatment;
• To promote and support financially further research into family-oriented aftercare and the total care concept;
• To highlight the importance of support for the whole family;
• To work together with other organisations and groups in order to help directly affected families and survivors of Wilms Tumour;
• To promote families rights to receive quality and up-to-date treatment and aftercare across Europe;
• To create and develop further a support network for families affected by Wilms' Tumour across Europe;
• Due to the base of this charity being in Scotland most of our work covers Scotland and the UK. In addition to our work in Scotland and the UK, we aim to develop a support network for families across Europe.
In addition, we bring out a regular newsletter full of wilms-related articles and info and organise 'A toy for hospital'. If you know of a child diagnosed with Wilms who has a stay in hospital please let us know and we will send something for the child. We remember very well the difficult time spent in hospital. For children it is often nice to open up a little something!
Contact:
monica@wilmsathome.org.uk
Last Updated: June 2008