Wilms@Home
Objectives
Wilms@Home works solely
for the benefit of families and survivors directly affected by Wilms
Tumour (nephroblastoma) during and after treatment. Everyone in the
Wilms at Home team works on a voluntary basis. Most members on the
committee are directly affected by Wilms.
Some of our main achievements since we started in 2004 have been so far:
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We have given grants to 17 families affected by Wilms based in the UK who have been struggling financially during treatment;
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We have provided some financial support to Professor Kathy Pritchard-Jones research in the area of Wilms Tumour;
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We have organised chemotherapy medication to a children's hospital in Beirut, Lebanon during a political crisis when the children's oncology ward was short on these life-saving medications;
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We have published 4 yearly newsletters full of Wilms-related articles for affected families and
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We have send toys to children affected with Wilms.
The
main objectives of Wilms @ Home are:
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To provide a support and info network for families affected by Wilms via website, email and newsletter;
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To highlight relevant issues affected families may have during treatment and aftercare;
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To enable family members affected by Wilms' Tumour to travel and attend relevant conferences and meetings;
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To promote and support financially further research into Wilms' Tumour treatment;
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To promote and support financially further research into family-oriented aftercare and the total care concept;
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To highlight the importance of support for the whole family;
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To work together with other organisations and groups in order to help directly affected families and survivors of Wilms Tumour;
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To promote families rights to receive quality and up-to-date treatment and aftercare across Europe;
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To create and develop further a support network for families affected by Wilms' Tumour across Europe;
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To give small grants to families directly affected during treatment and when times are difficult financially.
Due
to the base of this charity being in Scotland most of our work covers
Scotland and the UK. In addition to our work in Scotland and
the UK, we aim to develop a support network for families across Europe.
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