Links
Please let us know if you know of a helpful and relevant link we can add to this list.
We hope these links provide helpful information to you. However, Wilms@Home cannot take responsibility for the content of any website mentioned below.
Organisations directly relevant to Wilms Tumour
International WAGR Syndrome Association
Some children who are diagnosed with Wilms Tumour also have WAGR. This site provides some information on WAGR.
Sebastian's Action Trust
National Kidney Federation
Provides info on dialysis. There is some info especially prepared for children and their parents.
UK Transplant
Provides info on kidney transplants
The Medicalert Foundation
The medicalert bracelet carries medical info that may be important if the person is involved in a severe accident. In the case of wilms tumour, medical staff would know right away that the child/young person/adult has only one kidney.
www.medicalert.org.uk/howworks.asp
Generic Children's Cancer organisations (UK)
Cancer BACUP
Information service about different types of cancer including Wilms Tumour. The site provides info on treatment and research trials.
Children's Cancer and Leukaemia Group (CCLG)
National professional body for the organisation of the treatment and management of children with cancer and leukaemia in the UK.
Contact Magazine
The regular newsletter published by the CCLG.
www.childcancer.org.uk/contact/index.php
Clic Sargent Cancer Care
Providing a range of services for children with cancer and their families
National Alliance of Childhood Cancer Parent Organisations (NACCPO)
Working with parent organisations, the government and charities to help children with cancer.
Childhood cancer organisations across Europe and World-wide
Deutsche Kinderkrebsstiftung
A Germany-wide chidren's cancer charity providing information and acting as umbrella organisation to parent groups across Germany.
Deutsche Kinderkrebshilfe
An organisation in Germany supporting research into treatment of childhood cancers.
www.krebshilfe.de/deutsche-kinderkrebshilfe.html
Schweizer Kinderkrebshilfe
The Schweizer Kinderkrebshilfe provides info to families affected by childhood cancer. They have a regular Journal/newsletter, a library, and help families financially. They also hold contact details of local parent groups across Swizerland.
Other Info sites, which may be helpful for families affected by Wilms
The Picker Institute
Is an organisation working with patients and health professionals and focusing on patient involvement and learning about the patient's perspective on healthcare.
Ellen Macarthur Trust
Takes small groups of children diagnosed with cancer on sailing trips (with medical back-up)
contact:
monica@wilmsathome.org.uk
Last Updated: September 2007